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| Salmon Egg... |
 Posted: Wed Oct 28, 2009 4:34 pm |
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Guest
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Yesterday, I waited around at a famous eye facility for about four hours
not counting transportation time. During that time, they tried to give
me a visual field test and to photograph my retina even though that had
been done about a month ago at the same facility. At my behest, they
went to their computer files to find the missing data. During that time,
I had about ten minutes of tech and student time and five minutes of
main MD time. I could not get much information from the MD. I am getting
more disenchanted with the medical profession as I require more of their
services. I am willing to pay out of my own pocket in order to spend
quality time with an appropriate practitioner. AFIK that is not possible
under Medicare. I am afraid that this newsgroup appears to be my last
resort for information even though I have to avoid the information bombs
that show up all too often.
Starting about 18 months ago, I had trabeculectomies for both eyes. The
surgery seems to be successful because pressure is down to about ten
torr in each eye. Nevertheless there has been some further visual
deterioration. I was prescribed Xalatan drops again. It strikes me that
that is some grasping at straws. Maybe someone here can makes some sense
for this approach.
One of my complaints has been that that I have too much light
scattering. I was told that that glare is a common complaint of glaucoma
sufferers. I notice that my vision improves somewhat if I shield my eyes
from ambient light. I am not talking about using pinholes. I have
previously been told that I do not have much internal scattering. Optic
nerve damage was the cause.
I was trying to figure out, with my limited knowledge, how that could
be. The only thing I could think of is that there is demyelination in
the optic nerve causing "crosstalk" among the nerve fibers.
So, the main question I am asking for now is: What is the mechanism by
which glare is generated in an eyw that has lost significant vision from
glaucom?
--
As the years go by, dying just before having to fill out a tax return has merit. |
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| Ms.Brainy... |
| Posted: Thu Oct 29, 2009 8:20 am |
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Guest
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On Oct 28, 3:34 pm, Salmon Egg <Salmon... at (no spam) sbcglobal.net> wrote:
[quote]Yesterday, I waited around at a famous eye facility for about four hours
not counting transportation time. During that time, they tried to give
me a visual field test and to photograph my retina even though that had
been done about a month ago at the same facility. At my behest, they
went to their computer files to find the missing data. During that time,
I had about ten minutes of tech and student time and five minutes of
main MD time. I could not get much information from the MD. I am getting
more disenchanted with the medical profession as I require more of their
services. I am willing to pay out of my own pocket in order to spend
quality time with an appropriate practitioner. AFIK that is not possible
under Medicare. I am afraid that this newsgroup appears to be my last
resort for information even though I have to avoid the information bombs
that show up all too often.
Starting about 18 months ago, I had trabeculectomies for both eyes. The
surgery seems to be successful because pressure is down to about ten
torr in each eye. Nevertheless there has been some further visual
deterioration. I was prescribed Xalatan drops again. It strikes me that
that is some grasping at straws. Maybe someone here can makes some sense
for this approach.
One of my complaints has been that that I have too much light
scattering. I was told that that glare is a common complaint of glaucoma
sufferers. I notice that my vision improves somewhat if I shield my eyes
from ambient light. I am not talking about using pinholes. I have
previously been told that I do not have much internal scattering. Optic
nerve damage was the cause.
I was trying to figure out, with my limited knowledge, how that could
be. The only thing I could think of is that there is demyelination in
the optic nerve causing "crosstalk" among the nerve fibers.
So, the main question I am asking for now is: What is the mechanism by
which glare is generated in an eyw that has lost significant vision from
glaucom?
--
As the years go by, dying just before having to fill out a tax return has merit.
[/quote]
There is a merit to your complaint about some members of the medical
profession, and I sympathize with you. Healthcare reform anybody?
There is a merit to to your question re glaucoma and glare, but I have
no information or answer to offer.
There is a merit to your comment about dying before filing tax
return. I will remember it before I die. |
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| David Robins, MD... |
| Posted: Thu Oct 29, 2009 11:59 pm |
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Guest
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On 10/28/09 3:34 PM, in article
SalmonEgg-8E0172.15341828102009 at (no spam) news60.forteinc.com, "Salmon Egg"
<SalmonEgg at (no spam) sbcglobal.net> wrote:
[quote]Yesterday, I waited around at a famous eye facility for about four hours
not counting transportation time. During that time, they tried to give
me a visual field test and to photograph my retina even though that had
been done about a month ago at the same facility. At my behest, they
went to their computer files to find the missing data. During that time,
I had about ten minutes of tech and student time and five minutes of
main MD time. I could not get much information from the MD. I am getting
more disenchanted with the medical profession as I require more of their
services. I am willing to pay out of my own pocket in order to spend
quality time with an appropriate practitioner. AFIK that is not possible
under Medicare. I am afraid that this newsgroup appears to be my last
resort for information even though I have to avoid the information bombs
that show up all too often.
Starting about 18 months ago, I had trabeculectomies for both eyes. The
surgery seems to be successful because pressure is down to about ten
torr in each eye. Nevertheless there has been some further visual
deterioration. I was prescribed Xalatan drops again. It strikes me that
that is some grasping at straws. Maybe someone here can makes some sense
for this approach.
One of my complaints has been that that I have too much light
scattering. I was told that that glare is a common complaint of glaucoma
sufferers. I notice that my vision improves somewhat if I shield my eyes
from ambient light. I am not talking about using pinholes. I have
previously been told that I do not have much internal scattering. Optic
nerve damage was the cause.
I was trying to figure out, with my limited knowledge, how that could
be. The only thing I could think of is that there is demyelination in
the optic nerve causing "crosstalk" among the nerve fibers.
So, the main question I am asking for now is: What is the mechanism by
which glare is generated in an eyw that has lost significant vision from
glaucom?
[/quote]
When you do a trabeculectomy, you generally also do a large iridectomy
(remove a piece of the iris) near the surgical site. The purpose is to keep
iris out of the trabeculectomy channel, otherwise it can plug it as the iris
scars to it.
Light can easily get through the iridectomy hole, depending where it is made
and the size. The upper eyelid may not be covering the hole.
Is there less glare if you slightly squint the lid down on the iris, yet not
cover the pupil?
This is generally best handled with sunglasses.
I am not addressing other causes that you postulated, as I have never heard
of that as a reason. |
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| Salmon Egg... |
| Posted: Fri Oct 30, 2009 9:10 am |
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Guest
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In article <C70FCEE0.36696%trashadd1 at (no spam) runbox.com>,
"David Robins, MD" <trashadd1 at (no spam) runbox.com> wrote:
[quote]When you do a trabeculectomy, you generally also do a large iridectomy
(remove a piece of the iris) near the surgical site. The purpose is to keep
iris out of the trabeculectomy channel, otherwise it can plug it as the iris
scars to it.
Light can easily get through the iridectomy hole, depending where it is made
and the size. The upper eyelid may not be covering the hole.
Is there less glare if you slightly squint the lid down on the iris, yet not
cover the pupil?
This is generally best handled with sunglasses.
I am not addressing other causes that you postulated, as I have never heard
of that as a reason.
[/quote]
This post gives me a hypothesis to consider that I did not have before
to explain the glare. Thank you. I considered the demyelination
hypothesis because that was about the only thing that I could conceive
of that had any hope for explaining what I observed, even though it was
likely to be wrong.
I did notice that contrast improved if I used my hands to form an
eyeshade to block out ambient light.
Since reading your post I made the following observations.
1. I switched my computer display from white text on black background
(inverse video) to black text on white background.
2. As expected, the changeover greatly reduced the contrast by lighting
up the black text.
3. I used my forefinger to block off my pupil area by moving it across
the line-of-sight in various directions.
4. With my finger vertical, I moved it from my nose (my right eye is the
better one) toward the right to block out more and more of the screen.
It seemed that contrast improved as the pupil was blocked off. This
improvement extended far away from what was blocked off. The improvement
was noticeable but not truly dramatic. It was far enough away from the
blockage so I am pretty sure it is not a "pinhole" effect.
5. I tried the same with various orientations of my finger. My guess is
that the optimum orientation was pointing to 11 o'clock. This would
place the iridectomy at about 8 o'clock from my point of view.
As a result, I will have a new hobby trying to glean as much information
as I can from simple tests. I will also see if I can see any evidence of
iridectomy in a mirror. It has not been obvious to me so far.
I am not stupid so I resent the typical mushroom treatment I get from
physicians. Although Medicare and supplementary insurance covers my
basic medical needs, I am willing to pay out of pocket for extra quality
time with competent physicians. I get the impression that that is not
legally possible with physicians who accept Medicare. I have not really
been able to broach the subject in a meaningful way.
I would guess, without real knowledge, that I should be able to get an
hour of time for somewhere between $300-500. Correct me if I am wrong.
Bill
--
As the years go by, dying just before having to fill out a tax return has merit. |
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