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Posted: Tue Jun 03, 2008 11:27 am
Guest
On Jun 3, 11:47 am, Dana <dcarp... at (no spam) kiva.net> wrote:
Quote:
On Jun 3, 12:51 pm, chronichel... at (no spam) yahoo.com wrote:



Hi Dana, just out of curiosity, how did you get so concerned about
chronic lyme?

I was aware that Lyme could be pretty bad, could cause a lot of
chronic fatigue and achiness. And living, as I do, on ten acres, much
of it wooded, I've been aware that a tick bite was a possibility, and
that there was a chance of Lyme.

But I've done a *ton* of reading since I was diagnosed -- hey, I'm a
librarian's daughter, and faced with a challenge I do research. Got a
half-dozen books out of the library, read what I could find online
(with a skeptical eye toward the wackiest claims.) The chronic lyme
thing (and the controversy about whether there's really chronic lyme
or just post-Lyme syndrome) showed up everywhere. Hard to miss,
actually.

Is good to do your research, just try to be objective while on task. I
agree with 3rd, in the sense that you can get very ill (no pun
intended) advise from a forum on the internet. Even though I'm very
cynical about the Medical establishment, I also think your question is
more suited for your Drs (in fact if I was hesitant about the surgery
I would consult with more than one). My guess and personal opinion is
that the Drs may be more concerned with the possible interaction of
medication (i.e. antibiotics & anesthetics) than with the issue of
Lyme eradication. The only advice I can give you is to take
probiotics while on antibiotics (my Dr. forgot to mention that and it
wreck havoc in my body).
Dana...
Posted: Tue Jun 03, 2008 12:09 pm
Guest
On Jun 3, 5:27 pm, chronichel... at (no spam) yahoo.com wrote:
Quote:
On Jun 3, 11:47 am, Dana <dcarp... at (no spam) kiva.net> wrote:



On Jun 3, 12:51 pm, chronichel... at (no spam) yahoo.com wrote:

Hi Dana, just out of curiosity, how did you get so concerned about
chronic lyme?

I was aware that Lyme could be pretty bad, could cause a lot of
chronic fatigue and achiness. And living, as I do, on ten acres, much
of it wooded, I've been aware that a tick bite was a possibility, and
that there was a chance of Lyme.

But I've done a *ton* of reading since I was diagnosed -- hey, I'm a
librarian's daughter, and faced with a challenge I do research. Got a
half-dozen books out of the library, read what I could find online
(with a skeptical eye toward the wackiest claims.) The chronic lyme
thing (and the controversy about whether there's really chronic lyme
or just post-Lyme syndrome) showed up everywhere. Hard to miss,
actually.

Is good to do your research, just try to be objective while on task. I
agree with 3rd, in the sense that you can get very ill (no pun
intended) advise from a forum on the internet. Even though I'm very
cynical about the Medical establishment, I also think your question is
more suited for your Drs (in fact if I was hesitant about the surgery
I would consult with more than one). My guess and personal opinion is
that the Drs may be more concerned with the possible interaction of
medication (i.e. antibiotics & anesthetics) than with the issue of
Lyme eradication. The only advice I can give you is to take
probiotics while on antibiotics (my Dr. forgot to mention that and it
wreck havoc in my body).

Thanks, already taking one with 15 strains, 35 billion organisms per
dose. I have this mental image of the people at the supplement
factory counting out 35 billion bacteria with a teeny little
forceps...

Also using tea tree oil topically to kill yeast.
the 3rd Man...
Posted: Tue Jun 03, 2008 2:02 pm
Guest
On Jun 3, 4:27 pm, chronichel... at (no spam) yahoo.com wrote:
Quote:
Is good to do your research, just try to be objective while on task.

Yes. For what it's worth, I think the goal should be to know enough to
be able to ask informed and intelligent questions of my docs...and
something a Lymie learns quickly...to also be able to protect yourself
against ill-informed doctors...(and there are more than a few of
these).

But the docs are the ones with the experience...and the training.
being able to find information and understand it is one
thing...another thing to be able to use it properly.


Quote:
agree with 3rd, in the sense that you can get very ill (no pun
intended) advise from a forum on the internet.

This particular forum is pretty sad, now...compared to its former
self, but always was more geared toward discussion of broader issues,
I think, than other places. It is unmodearted which means all kinds of
insanity can prevail...and usually does. That also means, though, you
cannot be censored...(except for violations of Usenet and Google
Groups policies).


Lymenet USED to be a fairly good place...especially for support and
new patients...but has recently deteriorated into a mess of crackpot
nuttiness and alternative therapy voodoo...(and looks like, might be
some patients pushing products for their own financial reward). Take a
look, for instance at this:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=066750;p=2

...apparently, we are talking here about blasting ourselves with some
sort of laser-photon therapy. LymeNUTS in the 21st Century!!! Ohhh...a
LymeNUT and his money are soon parted...

(Hey...according to what one of them says...the unit only costs
"10k"...cheap at that price...I think I'll get two or three...if they
don't work...well, hell...won't the neighbors be jealous of my new
Christmas outdoor light show)...

The best and brightest of the former Lymenetters are now at the
Lymenet Europe Forum, which is turning out to be a pretty god place to
read and get info...
the 3rd Man...
Posted: Tue Jun 03, 2008 2:13 pm
Guest
On Jun 3, 7:02 pm, the 3rd Man <derdrittemann2... at (no spam) yahoo.com> wrote:
On Jun 3, 4:27 pm, chronichel... at (no spam) yahoo.com wrote:

"Is good to do your research, just try to be objective while on
task".

Yes. For what it's worth, I think the goal should be to know enough to
be able to ask informed and intelligent questions of your docs...and
something a Lymie learns quickly...to also be able to protect
yourself
against ill-informed doctors...(and there are more than a few of
these). You need to have enough of a knowledge base to be able to
sense if they know what they're talking about.

But the docs are the ones with the experience...and the training.

Being able to find information and understand it is one
thing. Quite another thing to be able to use it properly.

"...agree with 3rd, in the sense that you can get very ill (no pun
intended) advise from a forum on the internet".

This particular forum is pretty sad, now...compared to its former
self, but always was more geared toward discussion of broader issues,
I think, than other places.

It is unmoderated which means all kinds of
insanity can prevail...and usually does. That also means, though, you
cannot be censored...(except for violations of Usenet and Google
Groups policies).

 Lymenet USED to be a fairly good place...especially for support and
new patients...but has recently deteriorated into a mess of crackpot
nuttiness and alternative therapy voodoo...

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=0....

...apparently, we are talking here about blasting ourselves with some
sort of laser-photon therapy. (LymeNUTS in the 21st Century!!!
Ohhh...a
LymeNUT and his money are soon parted...

...hey...according to what one of them says...the unit only costs
"10k"...cheap at that price...I think I'll get two or three...if they
don't work...well, hell...won't the neighbors be jealous of my new
Christmas outdoor light show)...

The best and brightest of the former Lymenetters are now at the
Lymenet Europe Forum, which is turning out to be a pretty good place
to
read and get info...

http://www.lymeneteurope.org/forum/
 
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